What about enabling user communities like ACOR.org?
We're missing a *major* opportunity if we think health IT is limited to giving providers new systems. In my own cancer, sure I read & shared my online medical data in PatientSite, but the most valuable info I got anywhere was from my ACOR cancer patient community. Every condition needs something like this. Microscopic cost, enormous payback!
8 comments
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johnnorris
commented
I see enormous opportunities for patient empowerment flowing from a sound program of healthcare-reform and healthcare-IT-reform. New patient-centered research, educational, and communications tools come immediately to mind. I see a prominent role for the FDA here. I know that the best and brightest at the FDA very much want to upgrade its impact on all patient assistance and education.
John
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johnnorris
commented
This comment really goes to the heart of the question of whether we are at long last going to turn things around 180 degrees and create a patient-centric healthcare system. I strongly believe that we should--MUST!
John
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jjsmith
commented
Agreed. There a so many valuable resources that so many people just don't know about. Investing in consumer awareness and patient access to resources would be a wise call. After all consumers represent the largest untapped resource in controlling healthcare costs. Empower the consumer has historically demonstrated reduced acute care and better outcomes.
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ePatient Dave
commented
Several people have asked "How can I get from this page to the whole list to look at other topics?" It's here. http://transforminghealthcare.uservoice.com/
You can "vote up" other ones that you like or comment on any of them.
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Lynette Albee
commented
One of the many ways we can and should be in charge of our own healthcare.
I sincerely hope this goes a long way for all of us! Good luck. -
Laura Nathan
commented
Way to go Dave!! Lets hear it for on-line support systems. Wishing you success.
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conniefanning commented
WOW! Dave you are a real techie and I'm totally impressed :)
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ePatient Dave
commented
I'm the author of this question.
ePatient Dave