I would like to know...

What about enabling user communities like ACOR.org?

We're missing a *major* opportunity if we think health IT is limited to giving providers new systems. In my own cancer, sure I read & shared my online medical data in PatientSite, but the most valuable info I got anywhere was from my ACOR cancer patient community. Every condition needs something like this. Microscopic cost, enormous payback!

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    Anonymous shared this idea  ·   ·  Admin →

    9 comments

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      • Anonymous commented  · 

        Hail, Thank You So Much For Yours Over Common-Sense of the Humanity & Over Knowledge
        Divinity.
        You Are Welcome To Fountain of Life-Love Humanity Is That Very Theosophy-GOD of Fountain
        of Life-Love.
        Thanks-Dear Daddy & Dear Nanny To Be Thy Ran-Son My Darlings

      • johnnorris commented  · 

        I see enormous opportunities for patient empowerment flowing from a sound program of healthcare-reform and healthcare-IT-reform. New patient-centered research, educational, and communications tools come immediately to mind. I see a prominent role for the FDA here. I know that the best and brightest at the FDA very much want to upgrade its impact on all patient assistance and education.

        John

      • johnnorris commented  · 

        This comment really goes to the heart of the question of whether we are at long last going to turn things around 180 degrees and create a patient-centric healthcare system. I strongly believe that we should--MUST!

        John

      • jjsmith commented  · 

        Agreed. There a so many valuable resources that so many people just don't know about. Investing in consumer awareness and patient access to resources would be a wise call. After all consumers represent the largest untapped resource in controlling healthcare costs. Empower the consumer has historically demonstrated reduced acute care and better outcomes.

      • Lynette Albee commented  · 

        One of the many ways we can and should be in charge of our own healthcare.
        I sincerely hope this goes a long way for all of us! Good luck.

      • Laura Nathan commented  · 

        Way to go Dave!! Lets hear it for on-line support systems. Wishing you success.

      • conniefanning commented  · 

        WOW! Dave you are a real techie and I'm totally impressed :)

      • ePatient Dave commented  · 

        I'm the author of this question.

        ePatient Dave

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